Welcome to the Sophie Grace Medical Fund Website dedicated to Sophie's fight against liver disease. The purpose of this Website is to raise awareness of my condition and provide information to those following my treatments and medical procedures. I was born with Biliary Atresia and Situs Inversus, compounded by twisted intestines and multiple spleens. In plain language, my liver does not process bile into my intestines, all my organs are on the wrong side like a mirror, and I have five spleens instead of one. During my initial surgery, I surprised doctors with twisted and blocked intestines and needed 6 hours of surgery to repair my intestines and attempt to repair my liver until transplant.
Currently, I have fought through the surgery to fix my intestines, temporarily repair my liver, and removal of my gallbladder and appendix. Fortunately, the liver operation, (Kasaii), needed to prolong my liver appears to be working. Currently, I am recovering from my recent liver transplant at Georgetown Hospital Pediatric Tranplant Unit. Please read my story and meet the doctors and nurses helping me at Georgetown University "Children's Organ Transplant Center."




Sophie Grace Nelson
"Her fight against Biliary Atresia, hepatopulminary syndrome, and Liver Transplant"
Welcome to the Sophie Grace Medical Fund Website!
Sophie Grace was born September 5, 2008 in Fairfax Hospital with several birth abnormalities and a serious liver condition causing Sophie to need a liver transplant and recent heart operation. Please read Sophie's website and learn how she is fighting her liver condition and recovering from her liver liver transplant and rare lung issues. Thank you for visiting her website and your interest in supporting her through her liver transplant and treatment.  
Please follow us through our journey as we provide for Sophie and we fight to keep her healthy. On the Treatment Update page you will see what we have been doing to keep Sophie healthy and keep up with her one of a kind condition.

      "Now faith is being sure of what we hope for and certain of what we do not see."




Stacey seeing Sophie for the first time after giving her a second chance at life.
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Grandpa & Grandma Nelson
Sophie's 1st Birthday
Sophie Grace Nelson and Brooke Marie Wallace spending time after their transplants with the nurses and doctors who cared for both of them.

Left- Dr. Little holding Sophie and accompanied with Brooke.

Right- Transplant nurses who cared for both Sophie and Brooke in the same room where the photograph was taken. It was like a family reunion the day we took this photograph!!
Sophie's Turning "2"
Come Join us for a day of fun and celebration
When:     
               Sept. 11th

Time:      
               11:00 am --- 5:00 pm

Where:   
               Aquia Harbor Lions Park

Directions:     
               Take exit 143 (Aquia/Stafford)                         and head toward Rt. 1. Cross                         Rt. 1 and enter Aquia Harbor.                         At gate you will be directed to                         Lions Park. 

Activities:      
               We will be having hotdogs and                        hamburgers from 11:00am to                          1:00pm. We are having a D.J.                         and moon bounces for the                              kids!!! In addition we will have                          games and activities for the                            kids.

** in Lieu of presents, Sophie is requesting gift certificates to Toy "R" Us for the purchase of playground equipment.** 
Birthday_Flyer.pdf
Birthday_Flyer.pdf
To:1200 Aquia Dr.
Stafford, VA 22554
From:
Number and Street:
City:
State:
Zip:
Download the invitation

Aquia Harbour
1200 Aquia Dr.
Stafford, VA 22554
Elmo will be visiting between 12-1pm