Welcome to the Sophie Grace Medical Fund Website dedicated to Sophie's fight against liver disease. The purpose of this Website is to raise awareness of my condition and provide information to those following my treatments and medical procedures. I was born with Biliary Atresia and Situs Inversus, compounded by twisted intestines and multiple spleens. In plain language, my liver does not process bile into my intestines, all my organs are on the wrong side like a mirror, and I have five spleens instead of one. During my initial surgery, I surprised doctors with twisted and blocked intestines and needed 6 hours of surgery to repair my intestines and attempt to repair my liver until transplant.
Currently, I have fought through the surgery to fix my intestines, temporarily repair my liver, and removal of my gallbladder and appendix. Fortunately, the liver operation, (Kasaii), needed to prolong my liver appears to be working. Currently, I am recovering from my recent liver transplant at Georgetown Hospital Pediatric Tranplant Unit. Please read my story and meet the doctors and nurses helping me at Georgetown University "Children's Organ Transplant Center."
Sophie Grace Nelson
"Her fight against Biliary Atresia, hepatopulminary syndrome, and Liver Transplant"
Welcome to the Sophie Grace Medical Fund Website!
Sophie Grace was born September 5, 2008 in Fairfax Hospital with several birth abnormalities and a serious liver condition causing Sophie to need a liver transplant and recent heart operation. Please read Sophie's website and learn how she is fighting her liver condition and recovering from her liver liver transplant and rare lung issues. Thank you for visiting her website and your interest in supporting her through her liver transplant and treatment.
"Now faith is being sure of what we hope for and certain of what we do not see."
The Nelson family is proud to be a part of the
"Holliann Grace Center for Children with Disabilities"
Supporting the Center, we hope to assist other families and children suffering from children with medical, physical, and emotional disabilities.
Kimberly and Joseph Bice; May your daughter never be forgotten and your love for her be passed to others in need while Holliann blesses them from above.
Stacey seeing Sophie for the first time after giving her a second chance at life.
Gabrielle Alicia Phillips-On May 13, 2008 Gabrielle Alicia Phillips was born and our journey began. Gabbi was born with what doctors call malrotation of the small bowel(means when the small intestines were twisted and due to no circulation of blood her intestines died). She also had a serious life threatning infection that was so bad the doctors said they would be surprised if she made it the next 24 hours. That was the worst day of our lifes! Gabrielle is now 1yrs old and is now waiting on the transplant list for a Liver, Small Intestines and Pancreas. She has been on the transplant list now for over a year. Even though we are in and out of the hospital regularly, she continues to smile and surprise us all.
Alex Baker-Hi, my name is Alex but most people call me Peanut. I have had a tough time since being born July 9th, 2008 at only 5 pounds and am still struggling. I have been in and out of the Hospital and the Doctors still can't figure out exactly what is wrong with me. They think I have some type of Auto Immune Disorder, but even after sticking me with needles, giving me IV's, and trying every test and treatment they could think of... they still don't really know what is wrong.
Brooke Marie Wallace- As of October 9th, 2008, Brooke has received a beautiful gift from her aunt, Jessica Wallace. Jessica saved Brooke's life by giving her part of her liver! Brooke and Jessica are doing really good! Words can not begin to describe the gratitude we feel towards Jessica and this amazing gift she has given our family! We love you, Jes!!! Brooke and Sophie have shared stories in the Free Lance Star newspaper and their journeys parallel down to the room we stayed in at Georgetown Hospital.
Sophie Grace Nelson and Brooke Marie Wallace spending time after their transplants with the nurses and doctors who cared for both of them.
Left- Dr. Little holding Sophie and accompanied with Brooke.
Right- Transplant nurses who cared for both Sophie and Brooke in the same room where the photograph was taken. It was like a family reunion the day we took this photograph!!
Sophie's Friends
Please visit their websites
Meet the nurses and staff caring for Sophie in the transplant center.
At this time we are not conducting any fundraisers for Sophie as she is doing well and all her medical needs are being met. We respectfully ask that no fundraisers are held without first speaking with our family and obtaining our permission. All fundraisers need to be organized in a specific manner for tax reasons and therefore need to be discussed with our accountant.
Thank you for your understanding and we appreciate everyones support.
Currently, I have fought through the surgery to fix my intestines, temporarily repair my liver, and removal of my gallbladder and appendix. Fortunately, the liver operation, (Kasaii), needed to prolong my liver appears to be working. Currently, I am recovering from my recent liver transplant at Georgetown Hospital Pediatric Tranplant Unit. Please read my story and meet the doctors and nurses helping me at Georgetown University "Children's Organ Transplant Center." 
